Older adults living at home facing frailty and chronic illness, and their family caregivers, often experience challenges affecting their quality of life. Their priorities must be addressed by healthcare providers. Unfortunately, these are easily overlooked in the “hustle and bustle” of care. Tools for assessing quality of life make the priorities of patients and family caregivers visible to healthcare providers and leaders. Our goal is to develop resources to support the use of quality of life assessment tools.
We will meet with each group to identify their needs and the types of resources that would be helpful to them. Working with each group, we will develop customized resources that include education materials (for in person and self-guided learning), videos, and communication tools. These materials will be made freely available via an existing online person centred health information system, called the Quality of Life and Practice Support System (QPSS). The QPSS allows patients and family caregivers to complete quality of life assessment tools and share their information with healthcare providers.
This project will help put the voices of older adults living with frailty, and of their family caregivers, at the centre of healthcare. This goal unites patients, families, clinicians, and healthcare and government leaders in the pursuit of a Canadian healthcare system that meets the needs of all Canadians.